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This is the story of our family’s journey with a child with Sensory Processing Disorder. Our son is seven years old and neurotypical. Our youngest, Ellie is 4 years old and has SPD. This blog is an open and honest depiction of our lives as we struggle with SPD. You will get to see our successes and failures. Hopefully we can help others through Ellie’s story.

Give it up!

I have been struggling a lot lately with the stress of Ellie going to school. My thoughts throughout the day are filled with dread.  I just waiting for a phone call saying she’s having a tough day.  I walk in to get her daily with an anxious “first day of school”...

Quick Guide to Peaceful Traveling with an Autistic Child-A Guest Blog

  My blog today is a guest blog from a woman who I truly look up to. I am so privileged to know Dr. Kristy Donaldson and call her part of my sweet Ellie’s team of professionals. She allows me to get access and an insight into the published world of...

Labels

I know I haven’t posted since we went through the whole school debacle in May. A lot has changed since then, but a lot has remained the same. Since we have worked on Ellie’s sensory issues for the last year and a half and got her more regulated there have...

Disappointment

Some events happened this week that really affected me deeply.  Changes are happening that I can’t just sit back and watch. I can’t help voicing how I feel and advocating for kids like my Ellie. There are no private schools or preschools for kids like Ellie. We have...

One step forward, two steps back

I have been waiting to write again because I honestly hoped this season would pass.  Although this is a blog that is supposed to be an accurate depiction of our life, it is so hard to go through difficulties publicly. Ellie has begun struggling with some regression...

Everyday Wins

I know many of my posts thus far have seemed negative in nature.  I don’t mean it to seem that way. We were in crisis mode for so long.  We were walking on egg shells around Ellie and just trying to get through the day.  Though change has taken time, just this...

Help

So if you are like me, you know deep in your Mama gut when something isn’t quite right with your child way before others do. Whether you are ready to accept it or not, you have concerns. I know some people can be in complete denial, compartmentalize or stuff their...

Mama said there’d be days like this

These last few weeks have just not been great for Ellie.  Her normal teacher, whom she adores and has a deep connection with, was out dealing with things in her family and the behavior specialist at her school moved away and was replaced with someone new.  All these...

Potty Trouble

Recently Ellie has had so many great days.  She is so much more alert and present in class. She is able to focus on work when before she could never sit still long enough to try.  She goes to a school that is willing to give her accommodations like a quiet corner,...

There are more than 5 senses

I know so far I have written about the emotional side of living with a child with SPD, but I want to also cover what Ellie’s diagnosis encompasses and how it manifests itself in her daily life.  I am not an expert on sensory by any means, so I want to make that...

“When I was little and struggling in school, the research and strategies were not yet available to help me do better. Today I find that there are plenty of evidence-based programs and methods that are dramatically helping all sorts of issues concerning our kids.  They are spreading like wild fire all over the world.  If you are sitting there as a parent thinking “There has to be a better life than this for my child and our family,” I want to encourage you that you are correct. Things can be better. They will be better. You have much to feel hopeful about.”

Marisa Rodriguez

Behavior Health Consulting